Karachi: The volunteers of Patients’ Welfare Association (PWA) on Thursday organized programs to commemorate World Thalassemia Day at PWA’s Thalassemia Day Care Centre Civil Hospital Karachi.
The students of Dow Medical College organized different games, painting competition, cake-cutting ceremony, face painting and also distributed good-bags amongst children with thalassemia disease.
A PWA volunteer, Dr Abeer ul Amina said main objective of celebration of thalassemia day is to bring smiles on the faces of children suffering from this disease. She informed that PWA is a student-run non-governmental organization of Pakistan which is voluntarily managed by the students of Dow Medical College. She said PWA is providing medical services free of cost to destitute patients of CHK.
She informed that PWA is providing free of cost medical service to 273 registered poor patients suffering from thalassemia disease at PWA’s Thalassemia Day Care Centre. She further informed that about 20 to 25 children are being administrated safe blood, suffering from thalassemia daily at PWA Centre.
Consultant Haematologist PWA Dr Humaira Ghous told PPI here that about 5,000 to 6,000 babies are born with thalassemia disease every year in Pakistan. She said PWA provides safe blood and medicines to patients suffering from thalassemia.
She informed that thalassemia is a genetic disease. She said thalassemia is inherited disease of the blood caused by genetic defects in the patient’s body which result in production of an abnormal form of haemoglobin.
She said it is a genetic blood disorder in which children cannot make enough Red Blood Cells (RBCs) and needs to be supplemented with RBC transfusions every 2-3 weeks to stay healthy and to survive.
Dr Humaira said this disease is transferred from thalassemia carrier parents to their children. She said if both parents are thalassemia major carriers then there is a 25 percent risk with each pregnancy for an affected child. She thalassemia patients can spend healthy life if safe blood administrated them on time.
She stressed the need of proper awareness in the society in order to control further prevalence thalassemia in the country.
Vice President PWA Dr Ehrima Fatima, Dr Areeba Memon, Rija Sheikh, Urooj Siddiqui and other were also present.
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